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Rare Disease Day 2019

World Rare Disease Day: What It Means to be Rare

Today, the world focuses its attention on these patients during international World Rare Disease Day. World Rare Disease Day occurs on the last day of February every year and is highlighted across social media, legislative conferences, community events, and seeks to raise public awareness about the lives of people with rare diseases and the challenges they face. On this day, patients, medical professionals, caregivers, health advocates, and policy makers come together to discuss new ways to improve both care and quality of life for patients and their families.

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DNA Privacy. A New Approach.

Genetic testing kits are one of the hottest consumer products on the market today. More than 26 million people have taken an at-home ancestry test. In the last year alone, more people have done a direct to consumer DNA test than all prior years combined. If the trend continues, it is estimated that within the…

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The First Step

For far too long, companies offering direct-to-consumer DNA sequencing have charged people to get genetic reports. They then turn around and sell your data for

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