Blog Posts

Rare Disease Day 2019

World Rare Disease Day: What It Means to be Rare

Today, the world focuses its attention on these patients during international World Rare Disease Day. World Rare Disease Day occurs on the last day of February every year and is highlighted across social media, legislative conferences, community events, and seeks to raise public awareness about the lives of people with rare diseases and the challenges they face. On this day, patients, medical professionals, caregivers, health advocates, and policy makers come together to discuss new ways to improve both care and quality of life for patients and their families.

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